Hi, my name is Sandi, better known as Mema to Frankie and my other grandchildren. I was a primary caregiver to Frankie as I watched him when my daughter, his mom, went to work as a high school English teacher. These are some of my experiences with him.
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Hi Everyone who is interested in some stories of children getting older with Hyperlexia 3. My grandson Frankie turned 5 this past July 24th. That is still considered young as far as more hyperlexic traits fading but things are getting much better. My only disappointment is he still has to be in a very small class rather than the larger kindergarten class because he has some problems with transitioning. He is ahead of the children in what they have to do but behind in wanting to do what he is told.to.He loves the smart board and can answer the questions and go to the smart board to write the answer down this is when he is most interested in the classroom. He is still wonderful in his reading skills and is comprehending the stories more each day. Last year he would not go on the school bus but is coming home every day in one now without a problem. His vocabulary was always a large one but now his sentences are blooming just like Dr. Darold Treffert believed they would. He understands everything and always did but there are still times that certain words throw him off as far as an answer goes. One of those words are DO. What did you do today and he will answer I was good. But we are working with him on that. All in all in this past year Frankie has made amazing progress with speech. This year I sit and have conversations with him and he calls me Mema when he needs me. If for any reason your 2.3.4. year old hyperlexic 3 child hasn't reached the speech skills yet don't despair. like Frankie it is right around the corner! But don't forget let him read as much as he wants, let him echo if he does. All of that is helping him get to the next step of success. Talk again very soon. Good Luck!
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· November 1, 2015 ·
More updates on my Frankie a hyperlexia 3 child:
Things are getting better and better each year as Dr. Darold Treffert told me they would when he wrote to me about a year back. He has taken all of his experiences through the years and used them to help parents and grandparents alike to understand more about this very confusing and rare syndrome. Frankie is in kindergarten now and his 1st parent teacher meeting at his school was a very positive one. He is much less resistant to transitioning himself from one subject to another. He is really enjoying the company of his classmates. He is going on the school bus now like there was never anything wrong with it. He is going into larger classes for Social Studies and Science and doing extremely well with both subjects.This year he actually gave Trick or Treating a chance and had a great time. His speech has grown to where conversations with him are going on all the time. We are extremely happy! We want to give our heartfelt thanks to Dr. Treffert and Ms. Kupperman for teaching us how to help Frankie with his amazing skill in self taught reading at such a young age, and how to use it to help him grow in such a way that we now know nothing is impossible in a hyperlexic world.
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· May 26, 2016 ·
Hi I am Frankie's Mema and bring Frankie to school in the morning while my daughter is at work. Most mornings are care free and not a problem at all getting Frankie to school, he is so smart and absolutely loves school. But like many hyperlexic children there is a problem when something will be different. This morning was one of those times. But something was terribly different this time, most of his demands seem silly and not that concerning but this morning there was desperation in his tone. The weather now getting suddenly very warm in New Jersey has made it impossible for him to wear a jacket to school. The teachers informed us that he was turning very red during lunch time and would not remove his jacket. They were worried about him. We felt without the jacket at school he would have no choice but to go outside without it. I put shorts on him for the first time this season and he did very well, but when we were leaving the house without his beloved jacket there was no consoling him even though his mom went over it the night before and explained to him it was getting much too hot for a jacket now, It was nearly impossible to get him in the car.He was pleading with me the whole way. I realized today more than ever before that he was not being bad or stubborn just so confused to why he couldn't just stay in his comfort zone and at this time it was his jacket. In a few months and Fall begins his comfort zone will be without his jacket on. So sad for them and today also for me. But we can't despair because with our help the hyperlexic child will mature and understand life's changes and be able to conform to their world more and more each day. Prayers to all of them today and every day. I Love You Frankie!. Your Mema!
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· October 27, 2016 ·
Hi, I am Frankie's grandma. Mema as you would hear Frankie and my other grandson's calling me. I would like to update on something I wrote about Frankie this past Spring. As a hyperlexia 3 child Frankie has had a very hard time transitioning from one thing to another. It could be something as simple as changing from wearing a jacket for the colder weather to no jacket on the warmer days. He would cry and cry and beg me to let him wear his jacket. He wasn't being stubborn, he was panicking. I would feel so bad. Normally I would just give in to make life easier for him and I. But this time the teachers were reporting back to us that Frankie insisted on wearing his jacket for recess and while playing in the heat he was turning very red and they were worried about him and asked us to please try to send him without it. We had a very difficult time for about 3 days and he then began to accept it. I was fearing and expecting to go through this again now that we are having colder mornings. But to my surprise he is accepting wearing his jacket better than I could ever have imagined. He is happy to go with or without one and even asks me in the morning what he should do. I have again experienced the maturing of a hyperlexia 3 child. As Dr, Darold Treffert once wrote me " I predict you have many happy surprises ahead of you" He was so right and I will forever appreciate his hard work and dedication to help all of our children for over 30 years.